At 18, Lucia Adarve had been to more doctors than most people see in a lifetime. Things had been complicated for her since birth: She missed milestones, had seizures that led to collses and concussions, and struggled with communication and schoolwork. She had a hard time balancing and reacted poorly to stimuli like loud noises or bright lights.

Her mother, Lisa, was determined to find out what was wrong. Over the years, Lucia amassed a long list of diagnoses, including epilepsy, lupus, fibromyalgia, ADHD and dyslexia. But no label fully aligned with her symptoms, and no theries or treatments seemed to help.

“Her stack of medical records was getting bigger and bigger,” said Lisa. “I thought, ‘There’s no way this one child has all of these labels and issues. There has to be something underlying.'”

“No one listened to me”

Lucia’s condition upended her life from an early age. After she failed to thrive at multiple schools, Lisa, a former Montessori teacher, began homeschooling her in third grade. In addition to teaching Lucia a standard curriculum, she came up with out-of-the-box solutions, like teaching her to knit to develop fine motor skills and taking her horseback riding to improve her balance.

The efforts expanded outside the classroom. Lucia’s siblings liked to climb over a wall in the backyard to play in the woods around their home. Lisa propped up a ladder that Lucia could climb, and made the other kids use it too.

Despite her family’s support, the circumstances took a toll on Lucia. She experienced fainting spells that sometimes led to concussions and injuries, and occasionally had anemia. She became pessimistic about pointments and proposed theries, and while she loved her family, she was most likely to spend time with her service dog.

“No one listened to me. I didn’t see doctors as a good thing. I saw them as something I went to occasionally that didn’t do anything,” Lucia said. “I told my mom that my dog did more for me … than any of the doctors I spent time going to.”

Identifying a rare condition

In 2025, Lisa and Lucia visited Dr. Todd Arthur at Cincinnati Children’s Hospital Medical Center. The neurologist “spent a ton of time listening,” Lisa recalled. As the mother and daughter recounted “pages and pages of labels and random diagnoses,” he started researching, Lisa said.

“I’d never seen a doctor take that much interest,” Lucia said. Arthur offered “a lot of referrals,” Lucia said, including one to the Cleveland Clinic’s Undiagnosed Disease Clinic. Dr. Adnan Alsadah, the founder and director of the clinic, said the office aims to help the “many patients in the United States and globally who spend many, many years reaching a diagnosis and going from specialist to another, hospital to another.”

“On average, it’s more than 10 years until the diagnosis” for patients with ultra-rare conditions, Alsadah said. The clinic aims “to solve this diagnostic odyssey by utilizing the newest technologies,” including whole genome sequencing, which allows doctors to study the entirety of a person’s DNA sequence.

Lucia and Lisa spent a day undergoing a screening questionnaire at the clinic. Then Lucia provided a genetic sample, which was sent to a specialized laboratory to be analyzed for genetic variants. Four weeks later, the Adarves received a call: The clinic had a diagnosis.

“I knew something was different”

The test had found a mutation on Lucia’s PPP2R5D gene, meaning she had an incredibly rare condition called called PPP2R5D-associated neurodevelopmental disorder, better known as Jordan syndrome. There have been less than 500 confirmed cases of the condition worldwide, Alsadah said.

Jordan syndrome is a neurodevelopmental disorder. Dr. Wendy Chung, a pediatric medical geneticist and researcher, said people with Jordan syndrome may have a large head or identifiable facial features. The condition affects children’s development, and may cause difficulties with movement, speech, reading or writing. Some children, like Lucia, need modified instruction. Others never learn skills at all, Chung said. The disorder can also be associated with seizures, autism and ADHD. As patients age, they may experience parkinsonisms, or movement problems similar to those caused by Parkinson’s disease, Chung said.

Lisa said she was hpy to receive the diagnosis.

“It finally felt like, wow, these things were real. I wasn’t being overprotective. I knew something was different,” she said.

Lucia met the news with more mixed emotions.

“I felt really hpy about it for a month or two,” she said. “Then I started to feel slightly annoyed, because it frustrated me that it took 18 years to get an answer.”

“A clear plan for moving forward”

Having a diagnosis has helped create “a clear plan for moving forward,” Alsadah said. Medications have reduced Lucia’s seizures, and a multidisciplinary team from the Cleveland Clinic put together a management plan for her other symptoms.

Lucia has also connected with advocacy groups that push for research into Jordan syndrome and potential treatments for it, and support groups with members who can relate to her experience. She is also part of a clinical trial that is working to determine if a medication used to treat a different neurodevelopmental condition can help Jordan syndrome patients.

Lisa said that her daughter has also started to behave more like her bubbly, childhood self.

“She knows what she has, so she can kind of stand up and advocate for herself,” Lisa said. “She’s getting back to who she was. She’s helping others, she’s making friends.”

Lucia said she has mostly been relieved to stop spending so much time seeing doctors. She is working toward a degree in criminal behavioral psychology. She is one of a handful of Jordan syndrome patients who can function relatively independently, which she attributes to her mother’s efforts.

“I was extremely lucky to get my mom,” Lucia said. “She’s one of the best people I know. She worries way too much, and she is the best person to have during this.”

Call it “claw and order.”

A Missouri police officer is being called a hero after he made a grab-and-go rescue by clawing back a young child trped inside a popular arcade game.

According to the St. Charles County Police Department, Officer Brown was enjoying an evening off-duty with his family at Lucky Strike bowling alley in St. Peters last week when he spotted a young child trped inside an arcade claw machine.

“Armed with courage, nerves of steel and proximately $4, Officer Brown sprung into action,” the department said in a Facebook post.

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Officer Brown of the St. Charles County Police Department helped a small child who became stuck inside an arcade claw machine at a local bowling alley. (St. Charles County Police Department/Facebook)

A photo shared by officials shows Officer Brown proaching the young child, who peared to be trped in the prize-deposit area of the machine.

NYPD OFFICERS SAVE CHOKING 2-YEAR-OLD BOY, BODYCAM VIDEO SHOWS

The incident unfolded at Lucky Strike bowling alley in St. Peters, Missouri. (Google Ms)

“After an intense battle of skill, patience and button mashing, the veteran officer successfully defeated the nefarious arcade device and rescued the little girl,” the department said.

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“After an intense battle of skill, patience and button mashing, the veteran officer successfully defeated the nefarious arcade device and rescued the little girl,” the department said after Officer Brown freed a small child from a bowling alley claw machine in St. Peters, Missouri. (Google Ms)

Following the ordeal, the department said Officer Brown “calmly” returned to his own loved ones –where he bowled an impressive score of 96.

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“Just another reminder that the Officers of the St. Charles County Police Department are always ready to serve [the community] — on and off-duty,” the department added.

Fox News Digital reached out to the St. Charles County Police Department for comment.

Secretary of State Marco Rubio said Friday that it “would be lamentable” if a United Nations Security Council resolution on the Strait of Hormuz didn’t pass, adding: “Let’s see if the United Nations still works.”

The draft resolution, tabled by Bahrain, calls on Iran to immediately stop its attacks and threats against vessels in the strait and to end attacks on Persian Gulf states. It also addresses the placement of sea mines in the vital waterway, and Iran’s efforts to impose tolls on commercial ships using the strait.

Speaking to journalists ahead of a meeting of NATO foreign ministers in Sweden, Rubio said the draft resolution had “the highest number of co-sponsors of any resolution ever” at the council, the UN body tasked with maintaining peace and security through legally binding resolutions.

“Unfortunately, a couple of countries on the Security Council are thinking about vetoing it,” he added. “That would be lamentable.”

A similar resolution, also tabled by Bahrain, was vetoed last month by China and Russia, which, like the U.S. and the council’s two other permanent members, can unilaterally block a measure.

“We are doing everything we can though to achieve the sort of global consensus that’s necessary to prevent this from hpening,” said Rubio. “Let’s see if the United Nations still works.”

He said “almost every country represented here today” had co-sponsored the resolution, “and if they haven’t, I’m sure they soon will because I don’t know of anyone in the world … that should be in favor of a tolling system in an international waterway.”

Vessels are seen amid shipping gridlock in the Strait of Hormuz, as seen from Iran, May 22, 2026.

Majid Asgaripour/WANA via

Iran’s Ambassador Amir Saeid Iravani told reporters in early May that the draft was “deeply flawed, and one-sided.”

Saeid argued the solution to the crisis in the strait is a permanent end to the U.S.-Israeli war with his country, and the U.S. blockade of Iranian ports and vessels.

Alex Murdaugh talks with his defense attorney Jim Griffin during a jury-tampering hearing at the Richland County Judicial Center, Monday, Jan. 29, 2024, in Columbia, S.C. (Andrew J. Whitaker/The Post And Courier via , Pool)

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Luigi Mangione, charged with the murder of Brian Thompson, the CEO of United Healthcare, pears in State Supreme Court in Manhattan during an evidence suppression hearing in his case on Friday, Dec. 12, 2025 (Curtis Means for Daily Mail via Pool)

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Tyler Robinson, accused of the murder of Charlie Kirk, pears during a hearing in Fourth District Court in Provo, Utah, Thursday, Dec. 11, 2025. (Rick Egan/The Salt Lake Tribune via Pool)

COURTROOM CLASH: Robinson’s defense team fights to seal evidence and punish prosecutors in Charlie Kirk’s assassination

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NANCY GUTHRIE:

Authorities in Arizona are still searching for clues in the Nancy Guthrie case. The 84-year-old was last seen at his Tucson home on Jan. 31. ()

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COLD CASES:

Charles Berry, 66, of Newington, Connecticut, was taken into custody Monday in connection with the 1986 re and murder of Roberta Walls, the Newington Police Department said in a statement. (Newington Police Department)

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Gabriela Gonzalez faces attempted murder and conspiracy charges after prosecutors accused her of participating in an alleged murder-for-hire scheme targeting Jack Avery. (LA County Sheriff’s Office)

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